Concrete Pills

Hello there...

Just got back from my third treatment at the hospital. So I've had three chemotherapy sessions and three radiotherapy (RT) sessions now. I'm not radioactive though and I never will be. Just in case you are wearing your lead undies when you hang out with me.

I don't feel any different yet. Actually, I probably feel better if anything, because I am finally doing something, instead of just waiting around and sleeping. I hope it lasts. I think it will, but I really have no idea! This is the first time I've had this happen, I'm no expert at all of this! My doctors were very encouraging, saying I could handle this well, seeing that I am relatively fit and healthy. It's been a long time since someone said something like that to me. I loved it!

Mr Fit N Healthy.

So three down, 27 to go! Thats 10% done! Bring on January 20th! Oh yeah, then a month break, and on my birthday (thanks for the gift) I start six more months of stepped up chemo... OK then, bring on August 20th! Not long to go!


Also, as an aside, if you are finding this whole thing weird and don't know what to say to me or maybe you are uncomfortable and don't know how to talk to me or anything like that, just don't worry! I am still the same person and I love joking around, so maybe you could spend some time thinking up a good tumour or cancer joke and break the ice that way. I am a bit tireder than normal, and want to be alone often so I don't get annoyed with people, but when I'm at church or other social gatherings, like dominating on the backyard cricket front, just be the same and chat about it. I need to talk about it to process and try to figure all this out as well. I can't do that if you won't talk to me! But it's not really a big deal! Just bringing it up in case :)

The fact is, most people whinge about headaches, sore throats, coughs, tiredness, exams, relationships, being poor, being hungry, having an old cellphone, not winning on a computer game, poor refereeing, slow drivers, cold French fries, bird poo on my nice expensive car, rain, heat, cold,

...everything!

I'd like to say "get over it!"

Or possibly, "get over yourself!"

"how dare they drive so slowly in front of me! Do they not know who I am? I'm the centre of the universe! My wants, needs and desires are above all else! I'm gonna overtake them and give them the evils... Oh... It's my Pastor..."

"Hi!" *forced smile and fake wave accompanied by guilt*

I think, if I can handle cancer and other people can handle things far, far worse than that, like when Jesus was tortured and nailed to a cross, then prayed for those who were doing it! we can all probably handle things with a better attitude without getting all snotty and whinging. I'm just saying. To myself as well! Maybe there's something in your life that you could decide to get over?

The End

Oh and by the way, the doctors told me I could be a bit more random now, what with half of my brain being somewhere overseas now. Good luck following my random rants...

That was supposed to be just a quick sidetrack...

I guess what I'm trying say is, I have started. I am a chemo and RT patient. But I still feel normal. Just tired, which can occasionally make me a bit slow. I still haven't had a headache for literally months, or possibly years, it's been a very long time anyway. There's no nausea. Possibly because I have had several anti-nausea tablets today with my chemo, or maybe because I've had thousands of prayers! I reckon a combo of both is a good bet ;)

Thanks for the support, and thanks for reading these blogs, it is actually very encouraging for me to know that hundreds of people care enough to spend time reading my updates! It makes me feel quite good, if I'm gonna be honest!

TTYL (that's me mocking text speak)... LOL

Today...

Today is the day.

I had surgery four and a half weeks ago. Today I go to hospital to start my radiation therapy and my chemotherapy, as well as two more meetings this morning. All going well, I should be home before five this afternoon. Cancer treatment seems like a full-time job!

Thanks for your prayers and meals and other help. I have enough meals for this week. You know who you are :)

So the info from the oncology staff (which is basically the cancer department) is that the first few days should be ok, but then I will start losing my hair and getting extra tired. I will have nausea, irritability, permanent sunburn, possible infertility, weight change, and other positive side effects! But at least I'm alive right?

My good friend Andy Marshall isn't. Yesterday would have been his 30th birthday. But he was murdered in Perth, Western Australia, in May this year by someone associated with a bikie gang (allegedly). So I have a pretty bad problem, but I am still here to enjoy my life as best as I can, so you won't hear me complaining! I'm just grateful to still be alive, even though it's going to be tough for a few months. At least I have that time, which so many people haven't!

So I miss Andy. Nowhere near as much as his family, who it was great to see yesterday, but I will notice him not being around this summer as we have a few days of BBQs, backyard cricket and goofing around. It's so unfair, especially for such a great family. But thats life, we just have to get over it, if and when we can, with the help of our friends and family.

See you again, Andy. Not for a while though ;) I still have work to do!

50 years should be enough please. Thank you.

Yeah... Having said all of that, and as positive as I am determined to be, this whole situation absolutely sucks! I hate it. I want a nice family and kids and house and long enjoyable life that 'everyone else' seems to have. I am still hoping for that. I am still believing for that. But physically, my present reality is that I may only have a couple of years, maybe five or so, to live. I'm unhappy about that. Considering a year of it will be in hospital, while my friends keep having kids, great careers, planning their nice long lives together...

But as I was thinking yesterday, I would rather have five inspiring, legacy leaving years than 50 years where I am just another sheep following the crowd. I would rather be awake and live than asleep and live. That's what all of this has done. I am now awake. It was a wake up call. Stop mucking around being a good person, pleasing people so everyone likes you. That half assed life is a waste of time and will just be pretty much useless in the big scheme of things. Sort it out and get off your white picket fence! Sitting on it is a pain in the $@&!

Ooh, he said "assed"...

Get over it you religious hypocrite

*careful James, you are preaching!*

Oops

But it's still true.

Good point.

I'm a hypocrite too. Not all the time though ;)

Yes.

Internal dialogue finished.

So let's have a shower, and go take some poison and radiation to save my life for a few more years. I'll be back here soon to let you know how it all goes. Short term pain for long term gain. Please pray for strength, it's working so far! I will need more for the next few months.

Thanks family.

Appointlessments.

All right then, I'll write another blog... It's been a few days hasn't it.

Went to the hospital this afternoon, to start my treatments. To cut a long story short, they weren't organised. So they said sorry. We will try to start your radiotherapy and chemo next Monday instead. It's a bit frustrating, considering I was supposed to start last Monday, and things just keep getting delayed because the various departments haven't communicated and coordinated with each other. I've organised drivers and attended two pointless appointments at hospital in the last few days. In addition to this, they have also changed all of my treatment times twice.

I call them "appointlessments".

Also, today one of my radiotherapists said that I may not need chemotherapy after all! I've learnt by now just to wait and see thanks. Life doesn't have to be a roller coaster. Just focus on the hope you have for your future and do what you have to to get there. You don't have to go up and down with every little bit of news that you are given. I acknowledge it, I don't live in denial, but I don't let my moods and emotions follow what other people tell me. That's like being lost at sea and blown around by the wind and waves. Anchor your soul with hope. You don't have to drown in an ocean of negative emotions.

Ooh, I like that...

But, all of this disorganization is understandable, considering Tony Ryall is the minister of health, the man in charge at the top. Bless his heart...

But I jest. Forgive me ;)

In actual fact, the staff at the hospital couldn't be more pleasant to deal with, I have had nothing but great service, which has exceeded my expectations and made things far easier than I would've expected. You should try it out some time. Maybe fake some serious health problems and enjoy the ride. Especially the jelly and icecream. It needs to be seen to be believed.

Also, my friends and family have brought a tear to my eye by how much care they have shown me. If I haven't thanked you or returned your texts and calls, sorry, consider this your thanks. I have had so many offers of help, it has almost overwhelmed me! I guess if I was to say one thing, it would be that I need your help for a few months yet. I will be at hospital every day. I will prob lose my hair and be sick. My sickness benefit starts this week and it's only about the same as my mortgage payments each week, so it's gonna be tough to get by. Not just this week! But much of next year as well.

So, please don't forget me, but on the other side, one or two meals a month, or rides, or visits etc and I will be a busy boy! Also, I am pretty exhausted after around 8pm, so I'm sorry if I come for dinner and then zone out on the couch! Maybe earlier dinners would work best...?

Just some helpful hints that I have learnt in the last few weeks. Lol

Yeah, you all know that life sucks some times, I'm not the only one to have had serious health problems, but no matter how bad things get, there are always so many more things to be thankful for and to enjoy. Im tired, but I don't have to cook tonight! I have to go to hospital again tomorrow, but I get to see my best mate! Etc

Life's not about comfort, that a lie. It's about loving God and loving other people, and that's not always comfortable! But I'm so glad that people love me, and that God loves me. I can't imagine going through this without them.

It's all worth it in the end

Wait Issues

Hello...

Last Friday, I went in for another MRI. This was a post operative scan to see how the surgery went, and from those results, the medical staff could plan my future treatment. Originally, I was scheduled to come in on Monday the 5th of december, to have my first session of chemotherapy and radiotherapy, but after the results of the MRI, they put this back until thursday the 8th of december. Although I am getting a bit sick of waiting around at home, I am still happy with this news. This tells me that the six weeks, then six months of follow up treatment, although important, is not urgent. In other words, if I had some stuff still left in my head that urgently needed to start coming out, then they would've got me in there to get started. So the delay is actually good news, even though it drags things out for a few more days. Thursday 8th of December at 2pm is now the first session. Then 1:50pm on Friday. Looking forward to it...

In case you're wondering, each time I go in for a treatment session, I get a free car parking voucher to put on the car's dashboard. So we don't have to pay for parking! Good! basically, it will work like this: you drive around to the Oncology Department, drop me off, I go in, I get the voucher, I come out (to the car...), give you the voucher, then you go find a car park while I go in and wait. Then you come in and wait, or do whatever you want for a few minutes, like go get yourself a coffee, or some personal grooming, or do some donuts in the car park etc... Or you could come in and wait in the waiting room. We'll see what works best?

Then... Every weekday for six weeks, I have to go in for treatment. Usually this will take no more than one hour at a time, then I can go home and relax again. This will go all the way through Christmas holidays until late January. Ive had a few very generous offers of assistance, so thanks to those people, (you know who you are!) I owe you big time! They have given me the times for the following week as well, but as these could possibly change, I will just keep these to myself for now. Maybe next week I will broadcast them into Blogland for my knights in shining armour to come and rescue me. Thank you in advance to all those who can help.

Following this initial six week intensive schedule, I have six months of chemotherapy. This involves taking pills every day for a week, then having three weeks off to feel sick etc. Just as I start to feel better, I have to take the pills again for another week. And so on. For six months. Yay... That will be fun... I don't know too much about this stage of things, so I'll just leave it at that. Also, I am taking four pills each night to stop me having another seizure. Working so far ;)

Oh yeah. No driving for 12 months. Time I sorted out my bike! If I'm allowed to that is!

So, lots of waiting. No going out. Lots of time sitting on the couch. Getting SkyTV installed tomorrow. Can't afford it. Will just have to make some cutbacks somewhere, but as I am no longer doing a physical job, hopefully I can adjust my diet to eat less and spend less on food. Don't want any wait issues. I've got a marathon to run ;) A very good friend has shouted me a Fatso DVD subscription, which I have already ordered about 30 movies from! My cousin dropped off dozens of movies yesterday as well. Id better stop there, coz i'll forget someone! I love the advice I am getting from those who have been here before, so thanks for that, I really appreciate your help, even if I have lost a bit of my short term memory at the moment and forgotten to thank you each individually! God won't forget, even if I seem to for a while. I am honestly touched by your acts of love and kindness. I'll pay you back... Honest... :p

Waiting has thrown up all kinds of issues. (maybe not the best weigh of putting it). (yes my spelling mistakes are intentional). ( more bracketed comments)

Sorry, where was I? Oh yeah, sunbathing. Please pray for sunshine so I can lie around outside on my deck and get rid of my nasty ankle tan lines. I have been working on these for about five years, so I don't expect fast results, but considering I have a few months of resting at home, I intend to pursue them until the bitter end. White feet are not cool, and now is the hour for their demise. They have had their time in the sun (or not) and that has come to an end. If you wish to say goodbye to my white feet, send me a text and you can come and visit them. They won't be here forever, so don't take them for granted.

Ooh, I think I see some blue skies starting to break through.

I have work to do!